Ok… so the neurologist just left our room. He said, “it’s a good thing we did another MRI of her spine.” They had originally thought the tumor was an astrocytoma. Now they’re pretty sure it’s not. With a clearer view it looks like a hamartoma. Which means not malignant. And not technically a tumor.
Hamartoma – a benign, focal malformation that resembles a neoplasm in the tissue of its origin. This is not a malignant tumor, and it grows at the same rate as the surrounding tissues. It is composed of tissue elements normally found at that site, but which are growing in a disorganized mass.
The doctor described it kind of like a mole. It’s still skin, but a bit more of it in a spot than you want. NF-1 patients are prone to hamartomas and they can appear anywhere. They don’t think chemo will affect it, but that’s not necessarily a bad thing. These kind of cells grow in pace with your body, and chemo only attacks faster growing cells.
“Always be full of joy in the Lord. I say it again–rejoice!” – Philippians 4:4
Oh! Such sweet news. God is so good! Enjoy your precious daughter and family time on your vacation. And breath!
praising the LOrd for this great news.
Such great news! Thanku God!!!
This is great news. Praise Jesus.
Just got caught up on Hayvn’s whole story and want you to know that we will be praying for her and your whole gang! God is good, all the time, all the time, God is good! Love you Mr. Steve!
Ahhh… that really brings me back!
Praising the Lord for this good news!!
God is so good! I will continue praying for your sweet girl and your family.
(I’m the weekday child care coordinator at the Indiana campus)
Working at Lake James Christian Assembly this week with 5th & 6th graders and anthems but remember Light of the World ’97! Good times. Praying for your sweet girl and the rest of the family as you navigate this exhausting time. Great news on the spinal tumor!!!
If you need anything, including a babysitter, let me know. I’d be more the happy to help. Love you guys and praying for you all.
Oh praise God for this news! We will continue praying for your sweet girl. ??
Such wonderful news– God’s got this! He loves your sweet baby girl, and so does your whole church family! Will keep Havyn and all of you in my prayers!
Just read all of this and am amazed at your optimism. We are praying for all the things you asked – especially for the tumors to go away. Praying also for peace and strength for you and Tammy.
So thankful! Yes!
Oh my…..I’ve just read through all your posts. Soooo very sorry to hear that you all are going through this difficulty. May you ALL be comforted with the truth that GOD IS WITH YOU and HE IS FOR YOU!!! I will post Havyn’s picture in my “war room” ?and PRAY FAITHFULLY FOR HER HEALING!!! ?? Emlyn
Praise the Lord!! Such great news! Love you all and I will continue to be praying for God’s continued healing, protection and provision.
Praise God He is so good!
That’s awesome news Steve!! I’ve been thinking about you all since I saw your last post. I will continue to pray for your baby girl!
God bless you and your family!
Danielle Williams
Prayers and Gods love for you all. We will pray for everyone.
Praise God! This is great news! I was just told of Miss Havyn’s story today at our Love Where You Are Group. She is in our prayers and will continue to be along with your family.
Our family is praying for Havyn!!
This is Lizzie Vandermeer, Havyns teacher for bible study on Wednesdays in the two year old room. Her little friends in there prayed for her this morning before crackers 😉 We missed her and I will continue to keep her in my prayers. She is such a joy 🙂
Whew! So glad the second look brought into focus what was truly going on, and more importantly that it is not malignant. Love to you all.
PTL that is great news indeed!