Many have asked us about NF-1 and I’m including a couple resources that will be educational and inspirational. You can click the infographic to the right to learn more about NF-1. Then, watch the video below from The Children’s Tumor Foundation (CTF). They are on the forefront of NF research and are an incredible organization. Their mission is: Drive research, expand knowledge, and advance care for the NF community. And I love their vision: End NF. If you’re looking to make some end-of-year donations, consider CTF and help them pursue their vision to eliminate this disease.
This video talks about NF heroes like our Havyn. Some of video may be a bit disturbing.