Thanks for stopping by. Havyn is our tough little cookie. Soon after she was born we started noticing several spots on her skin. Fast forward a bit and we found out that she has a pretty tough genetic disorder called Neurofibromatosis Type 1 (NF-1). This tumor-causing disorder has been hitting her pretty hard. While not cancerous, she has brain tumors and a spinal tumor. She recently finished 18 months of chemo and those little jerks are no longer growing.
Enjoy taking some time getting to know our little nugget. We started this blog as a means to keep our friends and family updated on Havyn’s latest development. Our hope is that her journey will be an inspiration. This life is full of pits and struggles but God seems to always find a way to redeem things and Havyn’s journey has been no exception.
Read below for the most recent posts or visit the full blog for an archive of all posts.