Havyn had a large café au lait spot at birth. (Pronounced café olé which would be a place to grab a cup of coffee with a side of chips and salsa) It was the first of many spots. Those marks were the first indicator that she might have something going on behind the scenes. At about 6 months old we started to get concerned and began seeing specialists. I’ll skip lots of details for the moment, but ultimately we received the diagnosis of NF1 — Neurofibromatosis Type 1. You can research it to learn more, but it is a genetic disorder that affects 1 in 3000. Half are inherited, the other half a spontaneous occurrence. Hers is the latter. Continue reading “Getting up to speed…”
Introducing Havyn Joy!
So we’re starting this blog in 2016, but figured it would be appropriate to back-date a post to show our sweet girl a few years back. Havyn Joy Young was born on May 7, 2013 at 3:25am. She was 7 pounds, 8 ounces and 18.5 inches long. Continue reading “Introducing Havyn Joy!”