Fun while we wait!

Havyn and daddy spelled her name with dominos!
Havyn and daddy spelled her name with dominos!

Waiting waiting waiting. We’re still waiting to hear results from the MRI. She did great with sedation and all the other business today. We had fun playing in the “playground” as she calls it. We’re on the cancer floor, and Kosair has a great room up here full of all kinds of toys and activities. We’re down there all the time.

Right now Havyn is resting and we’re waiting for brothers and sister to come down and visit. Looking forward to reuniting the family! We still hope to go home today.

MRI then home!?

Havyn is first in line for an MRI this morning. That’s an answer to prayer! We are sitting in radiology now, waiting to start sedation.

Havyn is all set for another MRI!
Havyn is all set for another MRI!

Let me catch you up to speed on everything…

We met with the oncologist yesterday and have a clearer picture of what the next steps are for sweet Havyn. Continue reading “MRI then home!?”

More waiting…

First of all, Louisville is blessed to have a great place like Kosair. The staff here have been so friendly. This morning there were several teen volunteers who stopped by to see if there was anything we needed. They brought me a Diet Coke. For that reason, and maybe for a few more, I consider them heroes. I asked one how often he does this. “6 hours a day, twice a week.” In a narcissistic, self-absorbed world, it’s nice to see people who are willing to sacrifice their time to help someone else in need. And yes, Diet Coke is a need on days like these. 🙂 Continue reading “More waiting…”

T4-T9

One of the doctors, a resident, just came in to meet with us. We’ll hopefully talk with a neurologist and oncologist shortly.

This doctor was able to tell us a bit more about the tumor. It’s flippin’ huge – which explains the sense of concern we felt from all of the doctors and nurses yesterday. It spans from the T4-T9 vertebrae. Continue reading “T4-T9”

June 13 – Difficult News

IMG_20160613_181639Following the growth of her glioma, we were due for another MRI yesterday. We reported to Kosair Brownsboro (great people!) as instructed. Because of the additional images needed (of the spine) things took longer than normal. She was back for a couple hours. When she emerged, I (Steve) kissed her on the cheek and headed into church for a meeting. Tammy stayed at the hospital with her  while she woke up. We expected a phone call with results from our doctor within a day or two. Continue reading “June 13 – Difficult News”