We made it all the way to Sellersburg before our first potty break! 🙂
Time for a little vacay!
So we’re heading to Grand Haven in the morning. Looking forward to a little pre-chemo R&R. Looks like we’ll be starting that chemo on June 28. Continue reading “Time for a little vacay!”
Home sweet home… (and some updates)
First… we’re HOME! We rolled in about an hour ago and it feels good to be home. Havyn has been eager to see everyone, especially her cousin Ethan. Right now the plan is a bit of rest, and then tomorrow we’re packing for vacation. We’re hoping to head to Grand Haven, MI on Friday for a little pre-chemo time away.
Now for the updates…Â Continue reading “Home sweet home… (and some updates)”
Praise God… some good news!
Ok… so the neurologist just left our room. He said, “it’s a good thing we did another MRI of her spine.” They had originally thought the tumor was an astrocytoma. Now they’re pretty sure it’s not. With a clearer view it looks like a hamartoma. Which means not malignant. And not technically a tumor. Continue reading “Praise God… some good news!”
Fun while we wait!
Waiting waiting waiting. We’re still waiting to hear results from the MRI. She did great with sedation and all the other business today. We had fun playing in the “playground” as she calls it. We’re on the cancer floor, and Kosair has a great room up here full of all kinds of toys and activities. We’re down there all the time.
Right now Havyn is resting and we’re waiting for brothers and sister to come down and visit. Looking forward to reuniting the family! We still hope to go home today.
MRI then home!?
Havyn is first in line for an MRI this morning. That’s an answer to prayer! We are sitting in radiology now, waiting to start sedation.
Let me catch you up to speed on everything…
We met with the oncologist yesterday and have a clearer picture of what the next steps are for sweet Havyn. Continue reading “MRI then home!?”
Tumor pics… for those of you interested.
Click for photos… Continue reading “Tumor pics… for those of you interested.”
More waiting…
First of all, Louisville is blessed to have a great place like Kosair. The staff here have been so friendly. This morning there were several teen volunteers who stopped by to see if there was anything we needed. They brought me a Diet Coke. For that reason, and maybe for a few more, I consider them heroes. I asked one how often he does this. “6 hours a day, twice a week.” In a narcissistic, self-absorbed world, it’s nice to see people who are willing to sacrifice their time to help someone else in need. And yes, Diet Coke is a need on days like these. 🙂 Continue reading “More waiting…”
T4-T9
One of the doctors, a resident, just came in to meet with us. We’ll hopefully talk with a neurologist and oncologist shortly.
This doctor was able to tell us a bit more about the tumor. It’s flippin’ huge – which explains the sense of concern we felt from all of the doctors and nurses yesterday. It spans from the T4-T9 vertebrae. Continue reading “T4-T9”
June 13 – Difficult News
Following the growth of her glioma, we were due for another MRI yesterday. We reported to Kosair Brownsboro (great people!) as instructed. Because of the additional images needed (of the spine) things took longer than normal. She was back for a couple hours. When she emerged, I (Steve) kissed her on the cheek and headed into church for a meeting. Tammy stayed at the hospital with her  while she woke up. We expected a phone call with results from our doctor within a day or two. Continue reading “June 13 – Difficult News”